Resources

The Western Pennsylvania Chapter of the National Hemophilia Foundation:

http://www.westpennhemophilia.org

The National Hemophilia Foundation is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

http://www.hemophilia.org

The Centers for Disease Control (CDC) is the principal agency of the United States government for protecting the health and safety of all Americans and for providing essential human services, especially for those people who are least able to help themselves.

http://www.cdc.gov

The Hemophilia & Thrombosis Research Society (HTRS) facilitates basic science and clinical research endeavors specific to hemophilia and related coagulation disorders.

http://www.htrs.org

The National Heart, Lung, and Blood Institute (NHLBI) provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders. Since October 1997, the NHLBI has also had administrative responsibility for the NIH Women's Health Initiative.

http://www.nhlbi.nih.gov

For assistance with any type of medicine:

http://www.needymeds.com

The A.C.C.E.S.S. Program Advocating for Chronic Conditions, Entitlements and Social Services (ACCESS) helps families navigate the often complex maze of state and federal entitlement programs, as well as eligibility for health insurance. Entitlement Programs include Social Security Disability (SSD), Supplemental Security Income (SSI), Medicare, and Medicaid. Access also helps families understand state high-risk insurance pools and group health insurance continuation under federal law (COBRA and HIPPA).

For further information, call 1-888-700-7010 or visit www.uneedpsi.org

Patient Assistance Programs

Patient Services Incorporated (PSI) is committed to assisting persons with chronic medical illnesses in accessing health insurance and pharmacy co-payment assistance.

http://www.uneedpsi.org

The Baxter Healthcare Bioscience department assists health-care providers, patients and payers with a variety of economic, insurance and coverage-related issues.

http://www.thereforyou.com

Bayer Healthcare has a program that provides assistances for qualified patients who are dealing with loss of insurance due to job changes, coverage gaps while changing insurance plans, insurance plans that do not cover specific drugs and lifetime caps on medical benefits.

http://www.kogenatefs.com

The Grifols PatientCare Program is a patient assistance program offered by Grifols to help provide uninsured patients with access to Alphanate®, AlphaNine®SD and Profilnine®SD therapies.

http://www.grifolspatientcare.com

As the only patient assistance program created just for people with either hemophilia with inhibitors or FVII deficiency, Novo Nordisk offers a number of assistance programs called SevenSECURE.

http://www.novoseven-us.com/patient/sevenSecure_Overview.aspx

The Wyeth Pharmaceutical Assistance Foundation provides a number of specialized Patient Assistance Programs for treatments directed at medical conditions requiring more comprehensive support services.

http://www.wyeth.com

The CSL Behring Assurance Program is designed to ensure that people who rely on CSL Behring recombinant and plasma- derived therapies can continue to receive these vital treatments even if they experience a lapse in third-party, private health insurance.

http://www.allaboutbleeding.com/vwd_and_you/view.asp?id=4633